I’m coming up on the third anniversary of the spring day that I collapsed at home from a Type A aortic dissection. It was the most serious in a series of medical events caused by vascular Ehlers-Danlos Syndrome. There’s no cure for vEDS, no “remission,” and the only treatment is to avoid the physical and … More Dissecting anniversaries
Spring Training has come to our house. A year ago, Monica was just toying with the idea of running a marathon. Today, she’s got her eyes set on getting competitive. She doesn’t think she’s going to the Olympics or anything, but she’s loves getting faster. She’s working with a group of seasoned marathoners and a … More Spring Training
For Christmas 2018, we packed up our clan and headed out to southern Utah for a family week of skiing and holiday cheer. Packing for such a trip is no easy feat for a bunch of sea-level dwellers who wear shorts and flip-flops the entire year. Monica dusted off her ski clothes which date back … More What happens in Utah, stays in Utah
On Thanksgiving 2017 we received a call back from a nice couple who was selling a sweeeeet van. We’d already looked at the vehicle, but it was promised to a buyer coming in from out of town. Alas, that party backed out and the van was ours. November 25 is our Van-iversary. Initially I was … More Happy Van-iversary
Nearly six months after Monica was accepted on the John Ritter Foundation team for the New York City Marathon, it was time to see if all those early wake-up calls, all those long runs, and all the moans and groans had paid off. She packed, and repacked her bags to make sure nothing was missing. … More No, sleep ’til Brooklyn… or Staten Island or Queens or the Bronx or Manhattan.
This is a quick post to let everyone know that we’re heading to New York this weekend where Monica will run the NYC Marathon as part of the John Ritter Foundation team. If you want to follow the action in real time, she’s starting in the 11am wave of runners. You can track her progress … More Lace Up Your Running Shoes: 26.2 in the Big Apple or BUST
Before getting in to this week’s post, I want to say a word about a man who lost his fight with vEDS this week. J.B. was a frequent voice on a vEDS Facebook group that I follow. He’d had several complications over the years. Last week he suffered an abdominal dissection followed by multiple ruptures … More 8,500 miles in a van wasn’t enough… Monica is going 26.2 miles more.
The other day, one of my best friends told me about his family’s weekend road trip to Miami to celebrate his wife’s 50th birthday. They returned to the stomping grounds of their twenties to show their tween son and daughter where they lived – before kids. What ensued could have been lifted right out of … More A long series of near misses or a trail of destruction?
Friends, a lot happens on a two-month road trip and as I look back, there are so many tantrums, moments of frustration, periods of sheer joy, and hilarity that didn’t make it into the blog. Here’s a look back at some of the things that didn’t get their day of internet fame: The lamp and … More Outtakes from the road
*They say laughter is the best medicine, but I am not a doctor and nothing on this page should be interpreted as medical advice. If this is an emergency, please dial 911 – then read this until the ambulance arrives: Planning and executing a two month family road trip was a challenge. Doing it with … More Five tips for road-tripping with Vascular Ehlers-Danlos Syndrome (that can even help humans with non-mutant arteries)