8,500 miles in a van wasn’t enough… Monica is going 26.2 miles more.

Before getting in to this week’s post, I want to say a word about a man who lost his fight with vEDS this week. J.B. was a frequent voice on a vEDS Facebook group that I follow. He’d had several complications over the years. Last week he suffered an abdominal dissection followed by multiple ruptures … More 8,500 miles in a van wasn’t enough… Monica is going 26.2 miles more.

A long series of near misses or a trail of destruction?

The other day, one of my best friends told me about his family’s weekend road trip to Miami to celebrate his wife’s 50th birthday. They returned to the stomping grounds of their twenties to show their tween son and daughter where they lived – before kids. What ensued could have been lifted right out of … More A long series of near misses or a trail of destruction?

Five tips for road-tripping with Vascular Ehlers-Danlos Syndrome (that can even help humans with non-mutant arteries)

*They say laughter is the best medicine, but I am not a doctor and nothing on this page should be interpreted as medical advice. If this is an emergency, please dial 911 – then read this until the ambulance arrives:  Planning and executing a two month family road trip was a challenge. Doing it with … More Five tips for road-tripping with Vascular Ehlers-Danlos Syndrome (that can even help humans with non-mutant arteries)

Homeward bound!

In the summer between my sophomore and junior year of college, I took an “internship” with a book publisher. Sounds exciting, doesn’t it? Well, this “internship” involved selling educational books door-to-door, in a place thousands of miles from home. It made future jobs like telemarketing and selling life insurance seem fun. My three roommates and … More Homeward bound!

Missoula, an American paradise with a chicken in every pot and two food trucks in every driveway.

After Coeur D’Alene we didn’t have far to go to reach Missoula, Montana. I’ve never been to Montana, so I was excited to cross another state off my list. I was also excited to visit Missoula because Monica has been raving about Missoula since I met her. Seems her ex-boyfriend was from Missoula. I was … More Missoula, an American paradise with a chicken in every pot and two food trucks in every driveway.

Our unsinkable trip to the San Juan Islands OR Why men shouldn’t plan family trips

A few weeks before arriving in the coastal hamlet of Port Ludlow, west of Seattle (yes, west), I texted my best friend, who had invited us to cruise the San Juan Islands with his family on their boat. “Dan,” I said (that’s his code name), “Do you think 6 nights on a boat with 8 … More Our unsinkable trip to the San Juan Islands OR Why men shouldn’t plan family trips