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Don't make me turn this van around!

One family. A difficult diagnosis. An old van. And a new lease on life.

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About this blog

Until late 2015, life was exceedingly normal for the Kile family: work, school, little league, ballet – sweating the small stuff and missing the big picture. Then Jon suffered a ruptured abdominal aneurysm that required life-saving surgery. It would be the first of seven surgeries over the next seven months, including emergency open-heart surgery to save him from an aortic dissection. He was eventually diagnosed with a rare genetic condition called Vascular Ehlers-Danlos Sydrome, in which the most serious symptom is fragile arteries prone to spontaneous rupture. Jon has adjusted to a lifestyle which forbids him from strenuous activities and stress, while finding inner peace and humor against the backdrop of raising two feral children. Jon gave up business proposals and sales presentations for writing, car-line and PTA, while Monica traded committee meetings and budgets to take on the roles of patient advocate, genetics expert, cool mom and goddess of a 17 foot Dodge van. Together they’ve determined to “live in the moment” and fill the empty spaces in the calendar with family travel and adventure.

Featured Post: ‘Live in the moment’ because a moment may be all you have.

Before we got our sweet ride, I was a frequent passenger in another type of van.

Recent Posts

End of the Year Review
Goodbye to the Ol’ Dodge
Lazy Lake Days and the Best Worst Place To Have Car Trouble
What is this? Xanadu?
Rain, and vomit and bears, oh my!

Archives

December 2019
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January 2019
November 2018
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April 2018
March 2018
February 2018
January 2018

Instagram

As if the Uptown Sno Balls aren’t tasty enough, the spoons turn blue in the cold. Excellent ice cream too. This is going to be habit forming. #uptownsno #uptownsnoballs @uptown_snoballs #stpete

Monica set a PR in today’s #stpetebeachclassic half marathon. 1:41:something. Fun weekend with great weather. @destination_miles #stpetebeach

Monica set a PR in the #stpetebeachclassic. 1st or 2nd in age group (unofficially). @destination_miles

A lot to see between 47th and 84th. #newyorkcity #themet #hanschristianandersen #centralpark #hanschristianandersenstatue #timessquare

#timessquare #timessquarenyc #tkts #newyorkcity #familytravel

#centralparkatnight

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