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Don't make me turn this van around! RV Edition

One family. A difficult diagnosis. An RV. And a new lease on life.

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Month: April 2019

Spring Break Professionals

April 7, 2019

Our 2019 Spring Break trip was a highly anticipated opportunity to put everything we learned on the road last summer to the test. We would pack lighter and smarter. We would camp with finesse. We’d make it look easy – like those pretty people on Instagram who live in a utopia with no dirty laundry … More Spring Break Professionals

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About this blog

Until late 2015, life was exceedingly normal for the Kile family: work, school, little league, ballet – sweating the small stuff and missing the big picture. Then Jon suffered a ruptured abdominal aneurysm that required life-saving surgery. It would be the first of seven surgeries over the next seven months, including emergency open-heart surgery to save him from an aortic dissection. He was eventually diagnosed with a rare genetic condition called Vascular Ehlers-Danlos Sydrome, in which the most serious symptom is fragile arteries prone to spontaneous rupture. Jon has adjusted to a lifestyle which forbids him from strenuous activities and stress, while finding inner peace and humor against the backdrop of raising two feral children. Jon gave up business proposals and sales presentations for writing, car-line and PTA, while Monica traded committee meetings and budgets to take on the roles of patient advocate, genetics expert, cool mom and goddess of a 17 foot Dodge van. Together they’ve determined to “live in the moment” and fill the empty spaces in the calendar with family travel and adventure.

Featured Post: ‘Live in the moment’ because a moment may be all you have.

Before we got our sweet ride, I was a frequent passenger in another type of van.

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Monica had an incredible #tomokamarathon today. She shaved whopping 8 minutes off her personal best with a 3:21:13 and missed 1st place in her age group by 1 second. Perfect weather and a well run event. She’s go a 19 minute cushion for the tight Boston field. I think we’re going to Boston. #marathoner #bq @destination_miles #womenwhorun #geminisprings
Race day. #tomokamarathon #geminisprings #marathoner #thormotorcoach @destination_miles
No, it’s not the South Rim. It’s the outer reaches of a Cracker Barrel parking lot. #crackerbarrel
Post race beach walk on a Cape Cod like day on Ft. Desoto. #ftdesoto #stpete
Field trip on the #crossbayferry to Tampa to visit the Tampa History Museum. Perfect weather. #tampabay #stpete #homeschooling
Covid vaccine done.

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