vascular ehlers danlos – Page 3 – Don't make me turn this van around! RV Edition

We love Santa Fe, but are there cracks forming in the “adobe” of the family road trip?

June 22, 2018

After our great night in Oklahoma, we finished our three-day marathon drive to Santa Fe. This was a scenic drive that I remembered from a trip I took with some friends when I was a twenty year-old college student. Santa Fe is alone out in the desert. At 13 miles from our downtown hotel, there … More We love Santa Fe, but are there cracks forming in the “adobe” of the family road trip?

A Big Van Enters The Low Country

June 2, 2018

Through the magic of television, we were recently two places at once. Just before we left home, I got an email from a local TV station asking us if we would like to come on their morning show and talk a little about Vascular Ehlers-Danlos, our upcoming trip and, presumably, how we intend to maintain … More A Big Van Enters The Low Country

And we’re off!

May 28, 2018

And we’re off! … To the in-laws. Nothing like planning an epic 10,000 mile family road trip and making your first stop at the in-laws. Kind of like a Mars mission stopping at La Guardia first. But their house is a nice stopping point on the way to Charleston, they have a pool, and we … More And we’re off!

The final test before the summer journey

April 27, 2018

At the end of May we will load up the family and head out on the road without turning back (okay, we’ll be back by the time school starts.) We’ll be like modern pioneers in a van instead of a covered wagon. But I’m guessing even the early settlers probably took their Conestoga’s out for … More The final test before the summer journey

Zen and the Art of Conversion Van Maintenance

March 10, 2018

We bought our van at the end of November, and with just 17,000 miles in its 15 year life, it came with a few papers declaring its good health. And yes, it drives like a dream. But I began to notice some finicky behavior with the climate control system. It seemed to blow cold AC, … More Zen and the Art of Conversion Van Maintenance

Hello Cleveland!

February 27, 2018

“What brand of cancer do you have?” the man asked me, as we sat in a basement waiting room of the Cleveland Clinic. I hesitated a moment. He wore a hospital gown. Next to him sat a quart container of some sort of concoction he was required to ingest before going to his scan. He … More Hello Cleveland!

Don’t make me turn this PLANE around.

February 16, 2018

This summer, our blog is going to delve deep into the subject of family travel. There are a few things I need to get off my chest. I’ve purposely avoided scouring the internet for similar commentary in order to avoid the influence of the many family travel pioneers before me. Before kids, Monica and I … More Don’t make me turn this PLANE around.

The Maiden Voyage

February 12, 2018

Camping is nature’s way of promoting the motel business. —Dave Barry Before striking out on our big summer adventure, it is necessary to ready the troops for battle… errr… prepare the family for the fun that is to come! My wife and I have been together for more than a dozen years and in that … More The Maiden Voyage

‘Live in the moment’ because a moment may be all you have.

February 5, 2018

The only Zen you find on the tops of mountains is the Zen you bring up there. – Robert M. Pirsig, Zen and the Art of Motorcycle Maintenance If you’re following this blog, at some point you might have said, “Man, I wish I could take a two month vacation. How are they going to … More ‘Live in the moment’ because a moment may be all you have.

Don't make me turn this van around! RV Edition

One family. A difficult diagnosis. An RV. And a new lease on life.

Tag: vascular ehlers danlos