My disease is rare. Does anyone care? Ask The VEDS Movement

As I write this, I’m about a week away from my yearly (sometimes twice-a-year) checkup at Cleveland Clinic. This year, instead of boarding a flight, my family and I are traveling there in our RV. The days and weeks leading up to these check-ups always leave me a little (or a lot) anxious. The good … More My disease is rare. Does anyone care? Ask The VEDS Movement

We interrupt your regularly scheduled program for a medical field trip to Cleveland

I often contemplate how much to share on this totally public website. Partially, to preserve some level of privacy, and partially, in order to avoid obnoxious over-sharing. I know I’m guilty of the latter, and short of sharing copies of my medical records – I’ve been pretty open about my medical condition. After all, awareness … More We interrupt your regularly scheduled program for a medical field trip to Cleveland

Hello Cleveland!

“What brand of cancer do you have?” the man asked me, as we sat in a basement waiting room of the Cleveland Clinic. I hesitated a moment. He wore a hospital gown. Next to him sat a quart container of some sort of concoction he was required to ingest before going to his scan. He … More Hello Cleveland!

‘Live in the moment’ because a moment may be all you have.

The only Zen you find on the tops of mountains is the Zen you bring up there. – Robert M. Pirsig, Zen and the Art of Motorcycle Maintenance If you’re following this blog, at some point you might have said, “Man, I wish I could take a two month vacation. How are they going to … More ‘Live in the moment’ because a moment may be all you have.