It’s been a month since my last pandemic update. If there’s anything to say, it’s that not much has changed, which means things are going well. I’d like to take a moment a few things about vascular Ehlers-Danlos Syndrome Awareness month. It has been almost four years since I was in the throes of a series … More Vascular Ehlers-Danlos Awareness Month
I often contemplate how much to share on this totally public website. Partially, to preserve some level of privacy, and partially, in order to avoid obnoxious over-sharing. I know I’m guilty of the latter, and short of sharing copies of my medical records – I’ve been pretty open about my medical condition. After all, awareness … More We interrupt your regularly scheduled program for a medical field trip to Cleveland
I’m coming up on the third anniversary of the spring day that I collapsed at home from a Type A aortic dissection. It was the most serious in a series of medical events caused by vascular Ehlers-Danlos Syndrome. There’s no cure for vEDS, no “remission,” and the only treatment is to avoid the physical and … More Dissecting anniversaries
Nearly six months after Monica was accepted on the John Ritter Foundation team for the New York City Marathon, it was time to see if all those early wake-up calls, all those long runs, and all the moans and groans had paid off. She packed, and repacked her bags to make sure nothing was missing. … More No, sleep ’til Brooklyn… or Staten Island or Queens or the Bronx or Manhattan.
Just a quick post to let you know that we were honored to be approached for a story in Creative Loafing, the Tampa Bay area’s entertainment weekly (where I happen to have a column about writing and whatever else I want to spout about). We were asked to talk about how our approach to life has … More Check it out! We’re featured in Creative Loafing Tampa!
At the end of May we will load up the family and head out on the road without turning back (okay, we’ll be back by the time school starts.) We’ll be like modern pioneers in a van instead of a covered wagon. But I’m guessing even the early settlers probably took their Conestoga’s out for … More The final test before the summer journey
The only Zen you find on the tops of mountains is the Zen you bring up there. – Robert M. Pirsig, Zen and the Art of Motorcycle Maintenance If you’re following this blog, at some point you might have said, “Man, I wish I could take a two month vacation. How are they going to … More ‘Live in the moment’ because a moment may be all you have.